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James Maphiri's story: Beyond the shakes

16 Jul 2010

Parkinson's disease is a degenerative disorder of the central nervous system characterised by a large number of motor and non-motor features that can impact on function to a variable degree. [1] Symptoms include tremors, stiffness and slow movement due to the loss of dopamine deep in the brain. [2] And though depression, apathy and anxiety are well known features of this condition [1] beyond the shakes of Parkinson's disease, lies a person that once had a purpose, which often goes unfulfilled due to the symptoms of their condition.

The man who brought horse racing to the people via radio and television is renowned commentator, James Maphiri, who is well versed in the personal frustration that is an indelible part of Parkinson's disease. Diagnosed with the condition eight years ago, Maphiri was forced to retire from his profession when, as a result of his illness, he lost the most important tool of his trade; his voice.

Facing a life-changing illness bravely

"Parkinson's is a life changing disease that has limited a lot of the things I valued most in my life. I may have lost control of my body, but I will never give up on my mind. For this reason I have taken the decision to accept my condition, so that it does not get the better of me," says Maphiri. "With that said, I have to admit that my 12 grandchildren, who I refer to as the dirty dozen, have helped me come to terms with my disease," adds Maphiri.

When Maphiri awakens in the morning he has difficulty getting out of bed and it is at this point that he takes his medication. Though his treatment certainly contributes to Maphiri becoming more stable, he has been termed a "wear-off" patient. This means that Maphiri's condition has progressed to such an extent, that his prescription no longer addresses his symptoms adequately for the periods of time between his dosages. His medication quite simply wears off. [3]

'Wear-off' treatment

As such, Maphiri now uses a 'wear off' treatment three times a day to alleviate the challenges associated with the re-emergence of his symptoms, which includes difficulty with walking and talking. As a direct result of his treatment, as well as the wear-off medication he is currently taking, Maphiri is able to enjoy life once again. It is perhaps this fact, coupled with his resilient approach to life that has enabled him to accept with grace the condition which has often left him debilitated.

Adds national director of the Parkinson's Disease and Related Movement Disorders Association of South Africa, Karin Willemse, "Modern advancements in the treatment of Parkinson's Disease, as well as the scientific break-through of wear-off medication has ensured that patients of all ages can enjoy an independent life for longer."

The fact of the matter is that Parkinson's disease patients are sound of mind, and beyond the shakes of this condition, are vibrant individuals continuing to lead fulfilling and satisfying lives. James Maphiri is one such example, who, thanks to his effective treatment plan, is bringing joy to his grandchildren, just as he did to horse racing fans all those years ago.